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Cancer: a story of one
By Jenn LeBlanc
jkerriga@mscd.edu
Each year in the United States hundreds of thousands
of people pass away from cancer-related deaths. According to
the Centers for Disease Control and Prevention website, in 2004
alone, there were 550,270 cancer-related deaths. Cancer is the
second leading cause of death in the United States, behind only
heart disease.
Due to the ubiquitous nature of cancer it is easy
to dismiss these statistics as just a number. But behind each
of these deaths
is a personal story of pain, suffering and often indescribable
loss. In order to understand this effect of cancer, not just
on the victim but on the people who surround them, it is helpful
to experience one person’s account of this tragic disease.
Because of this, The Metropolitan offers the following photographic
and written account of photographer Jenn LeBlanc’s own
struggle with her mother’s tragic illness, and the sacrifices
her family made.
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| Auberry Lee was afraid to touch
her grandma when she came to the hospice. I believe
she thought if she felt it, touched it, it would then
be real. She could not take her eyes off of her, but
I had to help her hold her hand. |
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Francine Yvonne Barnum was diagnosed with cancer on Dec. 17, 2002.
She recovered, but the cancer returned the following November,
and in February 2005 she was diagnosed with terminal cancer. She
was given less than a year to live.
She was my mother, and this
is her story.
We did everything we could to help her. I quit my
job and made special arrangements for my daughters so I could
stay in school
and Mom would be able to rest. She said my 4-year-old daughter,
Gabrielle, was her daily blood-pressure medication and that just
watching her play made her feel better.
On Aug. 28, Mom collapsed
and was rushed to the emergency room. After the doctors stabilized
her, she was admitted to the hospital
for dehydration.
It was strange visiting my mother at the hospital.
It seemed every time I took her to the emergency room, three
or four times during
the summer of 2005, her room moved closer and closer to the nurses’ station
and farther away from the elevators and the exits.
We had a meeting
with her doctors and decided to place her in hospice care. She
would no longer receive active treatment for her cancer;
rather, a hospice team would visit her at home. Their only goal
was to manage her pain. She also signed a “do not resuscitate” order,
which was posted on the front door of her house like an evil warning
to visitors. It all meant that there was truly nothing left to
do to save my mom.
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| Unlike Auberry, Gabrielle needed
to be right next to Grandma the entire time we were
there. She was in costant contact with her, sitting
next to her, resting on her, holding her hand. But,
Gabrielle would not look at her grandma. She was scared. |
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Every day I went to her home to help her, to
hook up her IV so she wouldn’t become dehydrated, and to
bring different foods to see if there was something she could eat.
She had developed
a blockage in her intestines, an effect of the cancer that prevented
her from eating anything with fiber. Gabrielle and I spent a lot
of time wandering through grocery stores trying to find things
she might be able to eat. It didn’t help that nothing tasted
good because the chemotherapy and the medications had destroyed
her taste buds.
On one trip, Gabrielle happened upon some grape-flavored
Elmo applesauce and decided it was worth a shot. Whether Mom ate
it because it
worked or because she desperately wanted Gabrielle to feel better
I’ll never know, but because her grandchildren meant the
world to her, my guess is the latter. Even on her worst days she
did everything she could to be with them, talk to them and spend
time with them. Even Gabrielle knew that something was very wrong
with her grandma and tried to think up ways to help her.
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| Mom always sat on her stoop to
see us off in the morning, she loved to hear Gabrielle’s
stories about her adventures as a “big girl.” |
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The reality
of dealing with a loved one who has a terminal illness is unfathomable.
My family was “prepared” for this. We all knew Mom
was going to die. It was inevitable. We had even been given a deadline.
But to say that you can prepare yourself for the loss of your mother
is like saying you can prepare your home for a tsunami. Stay close
to it, hold on and live through it. Not likely.
On Oct. 7, 2005,
I dropped Gabe off at preschool and went straight to Mom’s
as usual. There was a horrible smell. If death has a smell, this
was it. Mom had me call her hospice nurse, and I
could tell she was scared. When the nurse arrived, she told me
that Mom was bleeding out. She held my mom’s hand and recommended
we call for a transport to take my mom to the hospice.
The first
thing to run through my mind was that it was only October. She
had a year. She had until February. This wasn’t right
and she couldn’t be going to the hospice already. This was
wrong and somebody had made a terrible mistake.
I walked outside
with the transport team and stood by Mom. She was so exhausted
from being moved that they stopped to let her
catch her breath. She leaned on me, and I put my arm around her.
She said she was going to be all right, that everything would be
all right. Then she lay down as they put her in the ambulance and
drove away. She never spoke to me again.
The next morning when
we arrived at the hospice, her face was tight and her entire
body looked tense. The one time she came around
she seemed to be begging for help, but the words just wouldn’t
come out. Her expression was excruciating. I straightened her head
on the pillow. I told her it was OK. I told her we were going to
be OK. I lied. She did not regain consciousness again.
I went home
that evening to pick up some things. As soon as I walked through
the door my phone rang. It was my sister. She said I needed
to get back. I left immediately, but by the time I reached the
hospice she was already gone. I screamed, “No, Momma, no,” over
and over again. But she couldn’t hear me.
Life is very different
now. The feelings of abandonment and extreme loneliness have
subsided but still remain. I imagine they always
will. My mom was everything to me. She was the one person in
the world I believe truly understood me, and now she is gone. |